Hello & welcome to   

Hello, we are Harry’s parents and Harry happens to have Down Syndrome.

We had a post birth diagnosis of DS which you can read more about on the Our Journey page.

When Harry was born, we didn’t know much about Down Syndrome except outdated stereotypes. Sadly, we were told a lot of BS about what life would be like for us and Harry. We didn’t know it was BS at the time and it was very stressful and upsetting. We were scared for the future…unnecessarily so.

I was a first time mum and although I loved being a mum, there were an awful lot of appointments and things to get my head around in the first year...on top of all the normal mum stuff that I was learning.  It was very daunting and it took me a long time before I wanted to know more; to learn about Down Syndrome. Up to this point, I was in a little new mum bubble, I felt very alone. I had only heard negatives, and I desperately needed to reach out and find the positives.

We have created this website for parents, parents-to-be, new parents, Grandparents and friends and family who might also like to reach out and find out a bit more. No BS about DS will hopefully be packed full of information you will find helpful. There are links to social media groups you can join, videos to help you learn Makaton, links to websites where you can read stories from other families and links to blogs to help you feel part of this wonderful community.  One of the things that has helped me the most, is people posting recommendations for books, toys, cups, and all manner of things to help like little rubber things to keep glasses on. On many occasions, I have struggled to find the item when I actually wanted it, so there is also a searchable sales area with links to products which will be continually added to.

Please let us know of anything you think we should include.

Thanks for stopping by, we hope you return often,

Cath, Kieran and Harry