Pre-natal or Birth Diagnosis

From the moment you receive the diagnosis that your wonderful little person has Down syndrome (DS), your life will change. I want to reassure you that whether you have a prenatal or birth diagnosis; whatever you are feeling is ok.  Most parents have been there.

Feelings of:

  • Loss - for the baby you thought you were going to have

  • Grieving - for the life you thought you were going to have

  • Sadness - gut wrenching, total body consuming sadness

  • Why has this happened to me?

  • Did I do something wrong?

  • Fear of the unknown

  • Worry for the future

And on top of all that - someone may tell you things that your baby won't be able to do.

** Do NOT listen **

It may take your child longer to reach milestones...it may not...the truth is, nobody knows.

Never under estimate the fight and determination inside our little people. No-one can predict the future of any child. You will be their biggest supporter and fight for them whenever you need to.  I assure you, you will burst with love and pride and celebrate the little things on the way to the bigger things.

Society has made DS a scary thing in the past but it doesn't need to be. We need to re-educate ourselves so that we embrace our children and celebrate their birth like any other: after all, they are more alike than different.

Take a breath....you've got this!

I wanted to include a few anonymous posts from mums to be so that you know you are not alone in your thoughts and feelings. These collection of posts are the reason we have put together this website.

We want you to know that you are not alone.

I'm 13 weeks tomorrow, Down Syndrome was confirmed hrs ago, we have cried non stop. People are telling us to have an abortion,  I don't want to. I love my daughter so much already. So far her heart is good. I just feel lost at the moment.
I reached out because I'm almost 20 weeks pregnant and just got the news from my doctor that my daughter has down syndrome. I'm scared, angry, confused and lost. ld love any advice anyone may have. Will my anger and heartache go away? This is a whole new world to me.
I had a birth diagnosis. I feel wrecked at times. I feel so weak as a mom. I have a wonderful supporting husband, but I struggle to accept what has happened to me. My son is 6 weeks old, but I still feel sad at times, for the challenges ahead. I overthink this a lot. I have a lot of fear.  I DON'T KNOW how to pick myself up again.
My little one is 6 and had her Kindergarten picture today! It's been a journey, but one I wouldn't change for a second looking back. She's been such a joy! Just wanted to share for all those Mama's that have been struggling. Hang in there! These kiddos are such a HUGE blessing!! ❤️
I wish when I was pregnant I had known how beautiful and perfect and wonderful she was going to be. How complete she was going to make our family. I think back on all my fears and insecurities and grief and feel such guilt. I feel anger at my doctors for repeatedly asking if I wanted to terminate my pregnancy and not supporting my decision to keep my baby. She is wonderful. She is beautiful. She is a child like any of my other children and I love her with all my heart.
I just wanted to share this...I was so scared and sad when we found out at birth about her diagnosis. I wish I could go back and take all that sadness I felt in the beginning away. She is the absolute light in our lives and I wouldn't change her for the world. New mam's, these kids are definitely the puzzle piece you didn't know you were missing!
Here are a couple of pregnancy support groups on Facebook that you can join where you can get some support and advice. I've also added a page which follows the Scottish twins - Ollie and Cameron -  who happen to have Down syndrome. Have a look and see how wonderful and amazing the children are and how their parents are blessed to have them. There are many other pages to have a look at on facebook and insta but these guys just make me smile so much.

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