Hello and welcome to
No BS about DS

We are Harry’s parents. Harry is 4 and he happens to have Down’s Syndrome.

We had a post birth diagnosis of DS which you can read more about on the Our Journey page.

When Harry was born, we didn’t know much about Down’s Syndrome except outdated stereotypes. Sadly, we were told a lot of BS about what life would be like for us and Harry. I didn’t know it was BS at the time and it was very stressful and upsetting. I was scared for the future…unnecessarily so.

I loved being a mum, but on top of all the normal mum stuff, there were an awful lot of appointments and things to get my head around in the first year. It was very daunting and it took me a long time to want to know more, to learn about Down's Syndrome. Up to this point, I had only heard negatives, I needed positives.

I found some blogs, Facebook groups, I watched a few YouTube videos and I visited a few websites…these all helped but I needed more. I wanted someone to talk to. I felt very alone and that’s when I came across the Future of Down’s Facebook Group. It has been such a comfort to be able to ask questions and read other parents experiences, but also to feel understood.

We want No BS about DS to be a central hub of information; the place you can come to easily find the information you need. We don't want you to feel alone.

There will be links to Facebook groups, blogs, websites, videos, suggestions for toys and learning aids, information about Makaton, EHCP’s and much more.

Please let us know of anything you think we should include.

Thanks for stopping by, we hope you return often,

Cath, Kieran and Harry